20 SEPTEMBER 2023
A NEW ARTICLE ABOUT THE OBSERV-AHC STUDY METHODOLOGY HAS BEEN PUBLISHED IN THE JOURNAL OF CHILD NEUROLOGY
After the article about the Event Calendar and E-Diary sub-project published on the European Journal of Pediatric Neurology, another great article has just been published on the Journal of Child Neurology about the OBSERV-AHC Study, the natural history and therapy study on AHC.
The article describes the procedures developed for a multicenter prospective data collection that can be used in future controlled trials for AHC and potentially for many other rare neurodevelopmental diseases.
Many thanks and congratulations to all the IAHCRC centers that are participating in the OBSERV-AHC Study, a milestone for the progress of research on AHC to the final step of a therapeutical trial for an effective treatment.
Many heartfelt thanks to all the patient associations that are supporting the OBSERV-AHC Study, as well as the IAHCRC-CLOUD Platform hosting the centralized OBSERV-AHC Study Database.
This article about the OBSERV-AHC methodology is available at this link.
Read the synopsys of the article recently published on the Journal of Child Neurology about the methodology of a...Pubblicato da Iahcrc International Consortium su Sabato 30 settembre 2023